Page 3 - N&V Winter 2019

rePOrTs From the Editorial Desk…
Editorial Desk 1
View from the Chair - Kevin Weston 2 we have come a long way since 1979 when the first
From the Secretary - David Hopkins 2 lupus Group Newsletter was published by our founder
CEO Report - Chris Maker 3 Cheryl marcus (see below) and this is clearly shown by the
Treasurer’s reports - Elaine Holland 4
number of pages in this bumper edition of your magazine.
Regional Group Reports 40 - 47
On pages 24 to 27 we are fortunate to have the personal
meDICAl mATTers
stories and experiences from some of our younger readers
Maintaining employment in SLE - online survey results 5
Sara Booth that show what can be achieved against adversity. Page 28
Increased Cardiovascular Risk in patients with SLE 6-7 features the second in a series of profiles of our valued lupus
Dr Liz Jury researchers; this time it’s Professor Christian Hedrich.
Hydroxychloroquine Prescriptions 8-9
End of Grant Report - Prof I Giles and Prof A Rahman 10 enclosed with this edition is our new eye-catching lupus
Awareness month poster and a sheet of stickers, which we
FrOm OTHer QuArTers
hope you will use to good effect. Further copies of the poster
MASTERPLANS update 23
can be downloaded via www.lupusuk.org.uk/lupus-
Education and Life with Lupus - Amy Baker 24-25
Katty’s territory - Katrina Brooks 25 awareness-month/ or requested, with other publicity
10 Lessons from my 10 Years with Lupus - Niamh O’Kane 26-27 materials, using the Publicity leaflet also enclosed; see
LUPUS UK Funded Researcher profile - outside back cover for further information.
Prof. Christian Hedrich 28
let’s make a huge impression this lupus Awareness month
World Lupus Day 30-31
and make lupus visible.
Eclipse News 32-33
A personal View - Cheryl Marcus 34-35
LUPUS EUROPE - LUPUS WORLD - Yvonne Norton 36
Lupus, the flower, the Dog and the Book - Régine Demuynck 39 40 Years of lupus news!
member INFOrmATION The first ever Lupus Group Newsletter appeared back in
Fundraising Focus 12-22 May 1979; a simple duplicated sheet, sent out to 20 lupus
pen-friends. Until Cheryl Marcus, founder, retired as Editor
Information Page 48 in 2002, she was to make this into the publication we now
LUPUS UK Contacts 49 know as LUPUS UK News & Views, reaching thousands. A
remarkable achievement for Cheryl and LUPUS UK. Look
out for her article on pages 34 and 35, A Personal View.
LUPUS UK News & Views Magazine

Published by: LUPUS UK, St James House, Eastern Road,
Romford, Essex RM1 3NH
Email: christine@lupusuk.org.uk
Tel: 01708 731251
National Office: Chris Maker, Christine Watkins
Winter ’19 Spring ’20 Summer ’20
Publication: 12 Nov 10 mar 14 July
Articles due: 20 Sept 24 Jan 22 May
Please send your letters, photographs and other articles for
possible publication to us at the above address. LUPUS UK
has to reserve the right to edit or shorten articles and such
decisions on publication must be final.
The articles appearing in ‘luPus uK News & views’ do not
necessarily reflect the opinions of LUPUS UK, its officers or
members. Articles taken from local group newsletters are
printed in LUPUS UK News & Views with the consent of the
author. Advertisements for products or services are not
endorsed by LUPUS UK and persons diagnosed with lupus or Do you remember the first edition you received?
suspecting the illness should always consult with their own The magazine continues to grow and we are grateful to
physician to ensure proper evaluation and treatment. our members for their continuing contributions.

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luPus uK NEWS & VIEWS SUMMER 2019