Page 15 - Today's Dietitian (February 2020)
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with type 1 experiencing diabetes com-  Disordered eating patterns that don’t   constantly timing their insulin. Every-
          plications—such as retinopathy, kidney   meet the criteria for a formal eating dis-  thing they do is constantly being
          disease, and neuropathy—they might   order diagnosis are more common; in   counted,” she says. Weiner emphasizes
          otherwise have encountered much later   one 14-year study of 126 girls aged 9 to   that multiple factors affect blood glu-
          in life or not at all.            13, nearly 60% at the end of the study   cose—including hormone levels, stress,
            Jessica Setnick, MS, RD, CEDRD, an   (when participants were at average age   and menstruation—meaning it’s unre-
          eating disorder expert and creator of the   23.7 years) reported disordered eating   alistic to expect to have “perfect” blood
          Eating Disorders Boot Camp training   behaviors, with the most common disor-  glucose levels all the time, something
          workshop, explains that “dysfunctional   dered behaviors being dieting and insu-  many people with diabetes don’t real-
          eating and insulin behaviors exacerbate   lin omission. The young women in this   ize. A desire for complete control—a trait
          the potential long-term complications   study received typical type 1 diabetes   endemic to eating disorders and disor-
          of diabetes. Whereas appropriate   care, but researchers noted that eating   dered eating patterns—over blood glu-
          management of diabetes may stave off   disorder and disordered eating behav-  cose levels easily can lead to distorted
          those complications for the next 30 or   iors—especially and most concerning,   views of food and unhealthful eating and
          40 or 50 years, problematic behaviors   insulin omission—increased during the   insulin behaviors.
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          can cause the complications we’re used   course of the study.         Setnick adds that this hyperfocus on
          to seeing in a 70-year-old person at a   Overall risk of developing an eating   food at such a young age compounds the
          much younger age.”                disorder is two to three times higher   stress of growing up “in a world of disor-
            Susan Weiner, MS, RDN, CDE,                                       dered eating.” Indeed, adolescents with
          FAADE, a speaker, author, and consul-                               type 1 diabetes aren’t immune to the
          tant, who copresented the session on   Knowing how to speak         typical risk factors for eating disorders
          ED-DMT1 with Brown at AADE 2019,      with younger type 1           and disordered eating, including genetic
          adds life-threatening diabetic ketoaci-                             factors, comorbid psychological disor-
          dosis (DKA) as a potential consequence   diabetes patients can help   ders such as anxiety and depression,
          of omitted or reduced insulin. In DKA,   RDs not only effectively   trauma, loss, social pressure, media
          the body breaks down fat rapidly when                               exposure, and unhealthful/abusive rela-
          it doesn’t have enough insulin to use   screen for ED-DMT1 but      tionships. Of note, depression and anxi-
          glucose as fuel, leading to a buildup of   also avoid and discourage   ety are more common in type 1 diabetes
          ketones in the bloodstream. Symptoms                                than in the general population, possibly
                                                                                                            1,3
          include weakness and fatigue, frequent   language and patterns      further increasing eating disorder risk.
          urination, excessive thirst, nausea and   of thinking that could      In addition, the ways in which health
          vomiting, confusion, and shortness of                               care professionals respond to the emo-
          breath. Without immediate treatment at   unintentionally trigger    tions and visit outcomes of people with
          an emergency department, DKA is fatal.   5  an eating disorder.     type 1 diabetes can trigger—or help pre-
            Increased mortality has been seen in                              vent—an eating disorder and disordered
          observational studies on insulin restric-                           eating behaviors. When people with type
          tion. In an 11-year study of 234 women                              1 visit with a health care professional,
          with type 1 diabetes (mean age 45), there                           many times they’re viewed only in terms
          was a three-fold increased risk of mor-  among women and girls with type 1 dia-  of their A1c or blood glucose outcomes
          tality with insulin restriction, as well   betes than those in the general popula-  as opposed to as a person, Weiner says.
          as higher rates of nephropathy and foot   tion. There’s no incidence data for men   “And if [these metrics are] for whatever
          problems. Thirty percent had reported   and boys, though they, too, experience   reason not within a targeted range, the
          insulin restriction at baseline, and mean   ED-DMT1.                body language of a health care profes-
                                                    2
          age of death was younger among these                                sional, let alone the verbal language of
          participants (age 45 vs 58).   6  Why the Increased Risk?           a health care professional, really sets
                                            Why are patients with type 1 so much   [individuals] off, and they feel blame,
          Prevalence                        more likely to develop eating disor-  shame, and guilt beyond anything we
          As with eating disorders among the   ders and disordered eating behaviors?   want them to experience,” she says. “This
          general population, exact figures for   The reasons aren’t entirely clear, but it’s   can sometimes lead to negative out-
          ED-DMT1 are unclear due to poor   thought that the emphasis on food that’s   comes” such as eating disorders and dis-
          detection. Some studies have esti-  necessary to manage type 1 diabetes   ordered eating.
          mated prevalence of any eating disorder   is a significant factor. There’s carbohy-
          among the population with type 1 to   drate counting, meal planning, blood   Counseling Strategies
          be 10% to 33%, compared with an esti-  glucose checks, and the sense of failure   How can RDs avoid making patients
          mated 3.8% among the general popula-  when glucose doesn’t fall within the pre-  with type 1 diabetes feel this blame,
          tion.  Risk of onset is greatest during   scribed range.            shame, and guilt that can lead to disor-
             7-9
          the preteen and teen years for all young   It’s a numbers game, Weiner says. “A   dered eating or eating disorders, as well
          people, the age range during which   person with type 1 diabetes is count-  as process the emotions that emerge
          many type 1 diagnoses occur.   3  ing carbohydrates constantly. They’re   throughout their diabetes journey?
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