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TSCare                                                                                                  TSCare
               Scientists are

              trying to find


 Getting to the point  Acupuncture is a deeply relaxing  out why people  The science behind sleep
 treatment that could help you sleep,
 explains Rebecca Bond of Riverside  with TSC have
 Acupuncture in West Sussex  sleep problems      Scientists are always trying to find out
 Good quality sleep is important as it allows your body to  more about what affects our sleep, but
 regenerate, repairing DNA and flushing away toxins. A lack  here we look at the research into the
 of it can affect your learning, mood and memory, and can  links with TSC and epilepsy
 increase your blood pressure, among other impacts.
 If you struggle to get enough sleep, you might want to  The science behind sleep     Professor Deb Pal
 consider the ancient traditional Chinese therapy of
 acupuncture. Through inserting thin stainless steel needles  Recent research has shown that children with TSC are at a higher risk
 into specific points in the body, it has been proven to be  of sleep problems, such as trouble falling and staying asleep, than  Sleep and epilepsy
 effective in improving and maintaining overall wellbeing. It  typically developing children.
 can also help with many specific conditions, as outlined by  These sleep difficulties were associated with painful health conditions,  Epilepsy and sleep are tightly related and
 NICE guidelines and the World Health Organisation,  so it is essential that physical health problems are assessed when sleep  there is a vicious cycle where anything
 including pain, depression, migraines, tension headaches  difficulties are identified in children with TSC. Those were the findings  that causes sleep disturbance or
 and arthritis.   of a study led by Dr Caroline Richards and Professor Chris Oliver at the  fragmentation can further trigger seizures.
 Acupuncture is a deeply relaxing treatment that aims to  Cerebra Centre for Neurodevelopmental Disorders at the University of  This includes sleep disorders,
                                                                            anticonvulsants or seizures themselves.
 tackle the root of the problem rather than just managing  Birmingham.
                                                                            A new study programme is looking into
 symptoms. The goal of treatment is to restore the  Read the full paper at goo.gl/6Vc9SY  this link.
 imbalances within the body, so that you feel vibrant and
        Or a blog summary at goo.gl/AiQZ3P
 energetic.  One of the great side effects of acupuncture is                 The Changing Agendas on Sleep,
 improved sleep, with patients finding that they are sleeping  Download Cerebra’ssupport guide for  Treatment and Learning in Childhood
 longer and deeper, and waking less. Patients wake up  parents at goo.gl/jvmCUo  Epilepsy (CASTLE) project is underway. It is
 feeling refreshed and with more energy, and drop off to                     being led by Professor Deb Pal at Kings
 sleep more easily.                                                         College London and Professor Paul
                                                                            Gringras at Evelina London Children’s
 To find a qualified acupuncturist, call the British
                                                                            Hospital, with a large team of clinical and
 Acupuncture Council on 020 8735 0400or go to                               scientific experts, as well as parents and
 www.acupuncture.org.uk             TSA Adviser training as                 young people. This study has been

                                           sleep practitioner               funded by the National Institute for
                                                                            Health Research for the next six years.
                                We are very pleased to be able to
                                                                            It is focusing on a particular type of
                                     tell you that our TSA Adviser          epilepsy called rolandic epilepsy, which is
 Keep a diary  If you are struggling to  Kendra Rhodehouseis, very soon,    the most common type, affecting about
                                                                            one-sixth of all children with epilepsy in
                              going to undergo training with the
 get onto the internet        Children's Sleep Charity to become            the UK.

 Keeping track of your sleep, as well as  to print a copy give  our first specialist Sleep Practitioner.   CASTLE need parents’ help. They’d like to
 your diet, habits and activities, could help  your TSA Adviser a  Watch this space!  know what you think they should include
                                                                            in their online sleep intervention so they
 you discover what’s keeping you awake.   ring and they will help           can tailor it for parents of children with

 So you can go about changing things.   you with this                       epilepsy. They’ll then ask parents what
                                                                            they think about it and whether it might
 To download a diary, go to                                                 work.
 www.nhs.uk/livewell/insomnia/documents/sleepdiary.pdf                      To find out more or register to take part,
                                                                            go to castlestudy.org.uk




 10 Summer 2018                                                                                        TSA SCAN   11
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