Page 48 - N&V June 2019

East Midlands

world lupus Day in World Tai Chi Day in Nottingham arranging it. Two members attended the
may was a big organised by Fibromyalgia UK. We met event and expressed a wish to form a
success. we had a with other associated groups, sharing Lincoln local support group, do please let
stand at the Treatment experiences. It was a most enjoyable day me know if you'd like to proceed with this,
Centre, university and the form of tai chi is especially we would love to get this going for our
Hospital, Nottingham and we received designed for people who may have some Lincolnshire members.
mobility issues. Classes are held at the
Treatment Centre, Nottingham and Hadhari Project
Rushcliffe Country Park Ruddington I gave a Lupus Talk at the Hadhari Centre
Nottingham. Do give it a try or contact me Derby on 25th June.
for more information.
Group meet ups
Events can creep into the diary when it is
too late to inform members via LUPUS UK The following are provisional dates,
News and Views, so please keep an eye please check on Facebook before coming
on our Facebook page for forthcoming
events. Nottinghamshire
many enquiries from visitors. Thank you Coffee and Chat, Saturday 3rd August
to Karen and rosie for helping out on Outlaw Half Triathlon at Lakeside Art Gallery NG7 2RD from
the day, and it was good to meet up 10.00 to 12.30. We meet in a room
with 'old' friends sylvia and Alan. Member Karen Moore's partner Martin
Simms raised a fantastic £1,155 for adjacent to reception, look out for the
world Tai Chi Day 2019 LUPUS UK by doing his first ever Outlaw signs. Family and friends welcome too.
We had a lupus information stand at the half triathlon at Holme Pierrepont leicestershire
Nottingham. This involved a 1.2 mile swim,
a 56 mile bike ride and a 13.1 mile run. Lupus Lunch held at Sainsbury's Cafe,
PHEW! Well done Martin and thank you! Leicester LE4 7SJ meeting at 12 noon on
27th July, 28th September and 30th
skellingthorpe lincolnshire November
methodist Church Hall
I hope to see many of you at one of our
Lupus was chosen as a beneficiary of a events, meanwhile, take care in the sun!
coffee morning and raised £156.87.
Many thanks for this, and to Jennifer for Gill Woodford

Pembrokeshire

we have had three March also saw Wendy and some members Positive times! We will keep you posted.
guest speakers at our of the group, along with Kevin Weston, We are always trying to reach out to
meetings this year, an Chair of LUPUS UK, attend the Welsh people in Pembrokeshire and beyond. We
Osteopath, an Assembly Government Buildings in Cardiff now have members from all corners of the
Acupuncturist and a to meet with the Deputy Medical Officer Hywel Dda UHB catchment area. We
Personal Trainer who for Wales and some of his team. This welcome members with Lupus or other rare
has a master’s in strength and meeting was a positive start and will auto-immune diseases, plus the overlapping
Conditioning. This has been so hopefully lead to more open conversations Scleroderma, Myositis, APS, MCTD, UCTD,
interesting and added a new dimension with the Welsh Government about Vasculitis, Sjogren’s etc.
to our meetings. so, a big thank you to improving lupus care for patients
those who have attended, giving their throughout Wales, but please keep signing All are welcome to join us, family and
time for free. and sharing our petition if you haven’t friends too, if you wish to bring someone
This is something that we would like to already! with you. We are a very warm, supportive
continue as a group. It has not only In fact, at the start of June, the group met and friendly group with a closed, private
broadened our knowledge of lupus symptoms with representatives of Hywel Dda UHB Facebook Group for daily support too.
but also educated us in the benefits of and again Kevin Weston, to discuss how we We will be celebrating our 2nd Birthday in
alternative therapies and exercise. can progress our issues locally. We are still September!
So, if anyone knows of a therapist who being supported by our Community Health So please get in touch.
would be willing to come along and talk to Council which is much appreciated. Of
us, please get in touch! course a big thank you to Kevin for his Wendy Diment
continued support.

GO THAT ExTRA MILE for people with lupus!

visit www.lupusuk.org.uk
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luPus uK NEWS & VIEWS SUMMER 2019