Page 35 - N&V Winter 2019

SunSibility-Specialists in UV Protective Clothing

‘Stay Safe in the Sun’ is our motto and we all garments are designed to give maximum
use this in a preventative way as well as protection against the sun’s rays (UVA & UVB)
a functional way. Preparation is always and are individually made to order in house
key in order to make everyday outdoor activities here in the UK. Suncreams, sunglasses & wide
easier for those who have to take extra care. brim hats are all available alongside the
SunSibility started off as a Women’s wear UPF50+ collection as well as sun protective
collection which has now expanded into a colourful umbrellas, window films and UV Meters.
and stylish clothing range Over the last 16 years the company has forged
with accessories for all the strong links with both the medical profession and
family, creating a one stop many charities that help them in their product
shop for the ultimate UV development. Committed to providing the highest quality merchandise
Protection. Many members SunSibility believe firmly in putting the customer first and listening to
of LUPUS UK have helped in their wants and needs, which is what keeps this company evolving.
the development of designs So if you do have any ideas, please do get in touch.
and the collection has To view the 2019 collection in full visit: www.sunsibility.co.uk or call
evolved along with the +44 208 224 2299 for a FREE brochure.
awareness of the dangers Quote ‘News & vIews’ to get 10% discount off your first order.
of over exposure to the sun. You can also join us on www.facebook.com/sunsibility to keep
Using a specialist UPF50+ and breathable fabric, up-to-date with our products and special offers.

LUPUS UK BOOK LIST

Order direct from National Office
The Facts-lupus (2nd Edition) (Prof. David Isenberg & Prof. Susan Manzi) £7.00 112 pages In depth look at lupus and its treatments

A Patient’s Guide to lupus (Prof. Graham Hughes) £2.00 112 pages Lupus brought right up to date
lupus - The butterfly and the wolf (Strathclyde Lupus Group) £1.00 39 pages Experiences, Hints and Tips
Hughes syndrome - A Patient’s Guide (Prof. Graham Hughes) £1.00 63 pages Comprehensive antiphospholipid
‘so you’ve got lupus’ DvD and booklet (LUPUS UK) Free of charge DVD and booklet for the newly diagnosed
(please add £1 to cover postage and packing)
lupus Progress Diary Free of charge Track symptoms, medications and appointments
(please add £1 to cover postage and packing)
The lupus book* (5th Edition) (Dr. Daniel Wallace) 304 pages Guide for Patients and Their Families
Please order from Oxford University Press – Enter the code AMPROMD9 at the checkout for your 30% discount http://bit.ly/2svArxC
PleAse ADD THe FOllOwING CHArGes TO COver POsTAGe AND PACKING - Thank you
up to £5 = £1 up to £10 = £2.75 up to £25 = £4.50 up to £50 = £6.30 Over £50 = £7.50 (uK orders only)
For orders outside the uK please contact National Office for postage costs *Hardback

‘LupusMinder’ App Helps Patients Track

Appointments, Medications, Symptoms

Effectively manage your lupus with this self-management tool developed with you in mind.
After realizing how many lupus patients had manage your meds and visits - With
trouble keeping track of their medications, lupusminder, patients can keep a log and
daily symptoms and appointments, an review their history during their
interdisciplinary team at the USA based appointment, saving valuable time, helping
Hospital for Special Surgery (HSS) developed communication, and optimizing treatment
a mobile app called LupusMinder. management.
living with lupus - Record symptoms Because patients can also take pictures of
between visits with notes and photos. Share their physical symptoms, such as a swollen
this history with your doctors. joint, doctors can also have improved
access to accurate information.
Track and share your symptoms - List
medications, track side effects and set lupusminder is available free for both
reminders. Note the questions you want to iOS and Android devices via the Apple
268C
ask your doctor. store and Google Play.
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luPus uK NEWS & VIEWS SUMMER 2019