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66                           Cardio Diabetes Medicine 2017







                    Childhood and Youth Onset Diabetes in


                India: Profile, Changes, Progress & Future ?




                                    Dr. Anju Virmani, MD, DNB (Endocrinology) (AIIMS)
                                               Senior Consultant Endocrinologist,
                                            Max, Pentamed & SL Jain Hospitals, Delhi







              Abstract                                           Childhood and youth onset diabetes in India:
              Pediatric diabetes poses high medical, psychosocial  Profile, challenges, progress and future?
              and financial  burden, especially  in resource  con-  Diabetes is the second commonest chronic disorder
              strained and  remote environments  where supplies   of childhood,  but  is extremely  demanding  in terms
              and specialized  team members  may not be  avail-  of medical, social and financial burden on the family
              able. T1D remains  the commonest  diagnosis,  but   and  the  health  care team.  In recent years,  however,
              T2D and other types  are increasing.  Challenges are   awareness of the disorder and management options
              many. Correct  diabetes  education,  which  is  crucial,   have improved dramatically, making it easier  for  a
              may not be imparted if medical and para-medical per-  child with diabetes to become a healthy, productive
              sonnel are themselves not aware. Insulin may not be   adult.
              available where needed, with  storage  and  transport
              at 2-8°C. Multidose regimens based on daily self glu-  The complexity of management  means that  ideally
              cose monitoring, most appropriate for age, finances,   the team looking after these children should consist
              intelligence  and  motivation  of  patient/  family, may   of a pediatric diabetologist, nurse – educator,  psy-
              not be advised. Safe disposal of sharps may not be   chologist, dietician,  with several  supporting  special-
              advised. Unnecessary  dietary and  other restrictions   ties, with access not just to insulin, but the necessary
              can  interfere  with compliance,  growth, and physical   technology for administering insulin (syringes, pens,
              and emotional development. Adequate monitoring of   pumps), tracking glycemia (glucostrips, continuous
              A1C, growth and puberty, and for co-morbidities (eg   glucose monitoring systems i.e. CGMS), and for mon-
              hypothyroidism,  celiac) and chronic complications,   itoring for acute as well as chronic complications. In
              and timely  treatment,  may not be  done.  Adequate   the absence of a nation-wide  registry,  exact figures
              financial and psychological support may be unavail-  of incidence  and  prevalence cannot  be given, but  it
              able. Poverty, illiteracy, and discrimination, in socializ-  is  estimated that  presently  India has about  70,000
                                                                                     [1]
              ing, education, jobs and marriage, can further worsen   children with diabetes  . These numbers and their im-
              health and quality of life.                        pact are set to rise for a number of reasons. Till a few
                                                                 decades ago, even pediatricians would not  suspect
              The challenges  can  be  met by  patients, families,   diabetes  in  a  drowsy  or  comatose child, breathing
              HCP,  charitable organizations, and society  at large,   rapidly, or dehydrated yet passing urine, or with pain
              working  together, using awareness,  support,  and   abdomen, etc.  Death before diagnosis or soon after
              technology. Significant progress has been made: im-  diagnosis  will  decrease  as  awareness  and medical
              proved  insulin  delivery  (syringes,  pens,  pumps) and   facilities increase. All forms of diabetes are becoming
              monitoring (glucometers, CGMS) devices; range of in-  more common as obesity increases (and the signifi-
              sulins and drugs; better lab support; freely available   cant overlap between type 1 diabetes (T1D) and type
              information on the internet; multiple self-help groups.   2 (T2D) can cause confusion). As survival improves,
              Extensive research  of different aspects is ongoing:   the burden of chronic complications will rise, as will
              T1D prevention, oral insulins, better devices, and islet   social issues, including education, employment, mar-
              cell and pancreatic transplantation.               riage,  discrimination,  etc. Poverty, often associated
                                                                 with  illiteracy,  poor  nutrition,  and poor  access to


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