Page 484 - Encyclopedia of Nursing Research
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ROGERS’S SCIENCE OF UNITARy PERSONS  n  451



             conditions. In a similar manner, research data   subjects who do and do not withdraw from
             is not publicly connected to the research sub-  studies involving particular diseases.
             ject, thereby assuring the subjects’ privacy.  The  protection  of  human  rights  in   R
                 Another way that the research subjects’   research  studies  is  important  to  the  moral
             right to privacy is protected is by obtaining an   integrity  of  nursing  research.  International
             informed consent and signed permission for   and  professional  codes  of  research  ethics
             invasive procedures used during the research   strongly  support  the  morality  of  research,
             process. For example, informed consent must   and  the  American  Nurses  Association’s
             be obtained before passing a levine tube to   Ethical Guidelines in the Conduct, Dissemination,
             obtain gastric contents for analysis. Nursing   and Implementation of Nursing Research (Silva,
             research on the privacy of human subjects is   1995)  supports  the  morality  of  nursing
             not yet documented. Potential areas for nurs-  research. However, nursing research on the
             ing  research  are  identifying  how  research   protection of human rights in research is at
             studies protect or do not protect the privacy   an  early  stage  of  development.  As  the  21st
             of human subjects, describing research sub-  century approaches, nursing research should
             jects’  perceptions  of  how  their  privacy  was   include studies of how human rights are pro-
             protected  or  not  protected  during  a  study,   tected in research and the factors that inhibit
             identifying  researchers’  attitudes  toward   or promote their protection in various kinds
             rules  of  confidentiality  under  different   of research designs.
             research  conditions,  and  identifying  insti-
             tutional review board members’ knowledge                              Sara T. Fry
             of and attitudes toward protection of human
             subject privacy in research studies.
                 The  right  to  refuse  to  participate  in
             research  protects  the  subject  from  being   RogeRs’s science of
             coerced to participate in research and assures
             that  research  subjects  are  truly  voluntary.   unitaRy peRsons
             Nursing  research  on  the  right  to  refuse  to
             participate in research is not yet documented.
             Potential areas for nursing research are iden-  In  1970,  Martha  Rogers  initially  published
             tifying the conditions under which research   The  Science  of  Irreducible  Unitary  Human
             subjects refuse to participate in a study and   Beings  (1990).  The  model  is  derived  from
             describing  why  subjects  have  refused  to   many disciplines and results in an integrated
             participate  in  particular  types  of  research   whole, unique to nursing. Within this frame-
             studies.                                 work,  Rogers  describes  the  natural  process
                 Human subjects have the right to with-  of  change,  the  inherent  quality  of  human
             draw  from  a  research  study  without  any   beings’  right  to  choose,  and  the  infinite
             untoward  treatment  of  them.  Even  though   nature of the relationship between man and
             they had previously consented to participate   the universe. Her description of nursing as a
             in a research study, subjects have the right to   learned profession, resulting from a strong aca-
             change their minds and withdraw from the   demic preparation and based in knowledge
             study at any time.                       unique  to  nursing,  was  equally  stunning
                 Nursing  research  on  the  right  to  with-  and controversial. Through 1994, she revised
             draw from a research study is not yet docu-  and  refined  her  theory.  She  makes  several
             mented. Potential areas for nursing research   assumptions  to  be  tested  so  that  further
             are  identifying  the  conditions  under  which   nursing  knowledge  can  be  formulated:  the
             research  subjects  withdraw  from  a  study   human being is greater than the sum of his parts;
             and  describing  the  course  of  treatment  for   there is constant, progressive interaction between
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