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Health Matters



                                                                              patients with refractory illness. In the
                                                                              current study, approximately one-half
                                                                              had undergone residential therapy, par-
                                                                              tial hospitalization, or intensive outpa-
                                                                              tient treatment, and two-thirds received
                                                                              three or more types of psychological
                                                                              treatment. More than 60% reportedly
                                                                              received family-based treatment, which
                                                                              is recognized as the most effective inter-
                                                                              vention for adolescent anorexia nervosa.
                                                                                “Anorexia nervosa is a complex
                                                                              condition with the highest mortality
                                                                              rate of any psychiatric disorder,”
                                                                              Accurso says. “We know that families
                                                                              are the most important resource in
                                                                              recovery, which is why family-based
                                                                              treatment is the gold standard for
                                                                              adolescent anorexia nervosa.
                                                                                “However, treatment doesn’t work
                                                                              for everyone. Parents are telling us
                                                                              that recovery needs to be approached
                                                                              more holistically, with treatments that
                                                                              extend beyond eating disorder symp-
                                                                              toms to target emotional well-being,
                                                                              cognitive flexibility, and establishment
                                                                              of a meaningful life.”
                                                                                The authors also noted that parents
                                                                              are challenging the field’s definition of
                                                                              recovery.
                                                                                “Parents are schooling us on how it
                                                                              should be defined,” says Accurso, who
          Complete Recovery Remains                                           is affiliated with the UCSF Weill Insti-
                                                                              tute for Neurosciences. “We found that
          Elusive to Anorexia Patients                                        parents have a much broader view of
                                                                              recovery, which included psychologi-
         T       hree in four patients with   Program and an assistant professor   living. Researchers are missing the
                                                                              cal well-being and building a life worth
                                            in the department of psychiatry. “Full
                 anorexia nervosa make a par-
                                                                              mark in defining recovery by weight
                                            recovery means that patients can find
                                                                              and/or eating disorder symptoms in the
                 tial recovery, but just 21%
                 make a full recovery, a mile-
                 stone most likely to signal per-  joy in their daily life, free from the physi-  absence of these other factors.”
                                            cal and psychological effects caused by
                                                                                Parents reinforced clinicians’ obser-
          manent remission.                 restrictive dieting.”             vations that physical and behavioral
            These results, and more, are drawn   For the study, partial recovery, she   recovery, which includes resuming reg-
          from an online survey of 387 parents, of   says, was defined as showing some   ular eating habits, precede cognitive
          whom 83% had children with anorexia   improvement but still symptomatic in   recovery, in which patients are no longer
          nervosa, 6% with atypical anorexia ner-  at least one of the following areas: physi-  plagued by extreme fear of weight gain
          vosa—a variant occurring in patients   cal health, eating disorder thoughts and   and body image distortion.
          who aren’t underweight—and the    behaviors, social functioning, or mood.  Among the patients—whose average
          remainder with other eating disorders.   Among the 21% (81 patients) who   age was 18, with a five-year history of
          The findings are reported in a study led   made a complete recovery, 94% had   the disorder—90% were female, 94%
          by the University of California, San Fran-  managed to maintain their recovery two   were white, and 90% lived in the United
          cisco (UCSF) and published in the Inter-  years later. “Unfortunately, patients who   States, Canada, the United Kingdom, or
          national Journal of Eating Disorders.  achieved only partial recovery continued   Australia.
            “This study reminds us that we need   to struggle and were much more suscep-  In a follow-up study, Accurso and
          to work harder to help individuals with   tible to relapse,” Accurso notes.  colleagues will look at how weight
          anorexia nervosa who are not respond-  Previous studies have found that   restoration, including the goal weight
          ing to standard treatment,” says first   around 50% of patients with anorexia   set by a patient’s clinician, impacts the
          author Erin C. Accurso, PhD, clinical   nervosa made complete recoveries,   recovery process.
          director of the UCSF Eating Disorders   but this study had a preponderance of   SOURCE: UNIVERSITY OF CALIFORNIA, SAN FRANCISCO
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