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TSCommunity                                                                                                                                                                                                    TSCommunity
                                                                                                                               A marathon effort

          Introducing Kathryn and Tanya

                                                                                                                               Our 2018 #TeamTSA Virgin Money London Marathon runners have done us proud
            - and now we are two!                                                                                              With temperatures reaching 24 degrees, this year’s Virgin Money London Marathon on Sunday 22 April was the
                                                                                                                               hottest ever. Undaunted, our five #TeamTSA runners rose to the challenge and between them have raised more
                                                                                                                               than £18,226.24 for the TSA.

             Dividing and conquering (TSC)
                                                                                                                                                                      Jamie Wareing Preston Council employee Jamie,
             – quite literally!                                                              Kathryn Harrison                                                             whose daughter Elsie (2) has TSC, was the first
                                                                                               kathryn.harrison                                             2018
                                                                                                   @tuberous-sclerosis.org                                                     #TeamTSA runner to cross the finish line.
          At the TSA we endeavour to give everyone who                                               07922 838 960                                                                                                     3hr48m

          engages with us an experience where they feel                                                                                              Graham SaleGraham was next in. The British Airways pilot
          valued and supported. This includes                                                                                                        from Sussex, whose wife Adrianne has TSC, completed his
                                                                                               Tanya Darnton                                         second London Marathon for #TeamTSA.
          people living with TSC as well as all our
                                                                                                 tanya.darnton                   4hr46m
          amazing fundraisers and volunteers.                                                       @tuberous-sclerosis.org
          We have therefore decided to                                                                07923 412 234                                            Huw KnightHuw from Devon was our third finisher. The
          combine the fundraising and volunteer                                                                                                             Novartis employee, has worked closely with the TSA for years.
          coordination roles into one and then                                                                                                                                                                          5hr4m
          divide the country into two – north and south.
                                                                                                                                                     Richard VennardWelsh Water’s Richard Vennard, from
          By doing so we have the opportunity to provide                                                                                             Cwmbran, is granddad to Elsie Wareing (above).
          better and more cost-effective support in the region                                                                       5hr16m

          to make sure you are getting the best out of the TSA.                                                                                             Kris StaffertonEssex-based manager of Greggs Kris, father to





          We are pleased to announce that Kathryn Harrison is                                                                                                Faith (2), who has TSC, gave #TeamTSA a 100% success-rate at
          now the Fundraising Manager for the North of                                                                                                                                      2018’s London Marathon.     6hr33m


          England (in blue – she’s a City fan!) and Tanya
          Darnton is the Fundraising Manager for the South (a                                                                    A huge thank you to you all our runners and to everyone who supported them on
          Southampton supporter!).                                                                                               their London Marathon journeys. Whether you sponsored them, shared their
                                                                                                                                 stories on social media or came along on the day to cheer them on, it meant a lot.






          You can see the areas they cover on the map below.
                                                                                                                                                                                                                        Some people ran the
          A review will take place in September about how we
                                                                                                                                                                                                                        London Marathon to
          will manage the regional groups going forward but                                                                                                                                                            raise money for the TSA
          until then, both Tanya and Kathryn will be available                                                                  Challenge yourself with #TeamTSA

          to you, depending on where the event is located. For                                                                                                                                                         There are lots of other
          further information, please get in touch via email                                                                                                                                                             ways to raise money
          or phone – we are always delighted to hear                                                                              Running isn’t the only challenge you can take to raise funds for us.
          from anyone wanted to get involved.                                                                                     However you like to get your adrenaline rush, there’s an event for you:
                                                                                                                                          Tackle an assault course – how about trying Tough
                                                                                                                                                                                                        Do a sky dive – do it as a group or as
                                                                                                                                          Mudder, go to www.toughmudder.co.uk
                                                                                                                                                                                                        an individual at bases across the
                                    TSA t-shirt                         #TeamTSA children’s                                                                                                             country, and claim a free jump if you
                                    (sizes S, M, L and XL)              hoodies                                                   Ride a zip wire – if you’re going to do it,                           raise the minimum sponsorship.
                                    £5                                  (sizes 3-4, 5-6, 7-8, 9-11) – £20                         you might as well do the biggest zip wire                             www.skylineparachuting.co.uk
                                                                                                                                  in Europe. www.zipworld.co.uk
           Shop                     TSA pin badge                       #TeamTSA adult’s                                                                                                  Swim or cycle for us.  To find out more,
                                    £1
                                                                        hoodies
                                                                                                                                                                                          go to www.tuberous-
            TSA                     Our distinctive                     (sizes S, M, L, XL and XXL) – £25                                 Do a bungee jump – they run across the country,   sclerosis.org/new-challenge-
                                                                                                                                          so why not take the leap? www.ukbungee.co.uk
                                                                                                                                                                                          events/biking-swimming
                                    running vest
                                    (one size) – £8                     TSA Hessian bag
                                                                        £3.50
                                                                                                                                    To find out about more challenge events, go to www.tuberous-sclerosis.org/challenge-events.html
                                                                                                                                    or to create your own contact our fundraising managers Kathryn and Tanya on
                 To order, go to www.tuberous-sclerosis.org/shoptsa or call 020 7922 7731                                           fundraising@tuberous-sclerosis.org or 020 7922 7731


     30 Summer 2018                                                                                                                                                                                                           TSA SCAN   31
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