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TSCommunity In your region In your region TSCommunity

In Wales In Northern Ireland

Is the Well-being Act working for you? Epilepsy Action has moved

Carers Wales wants to find out how well the Social Epilepsy Action Northern Ireland has moved
Services and Well-being (Wales) Act 2014 is premises. Its new contact details are as follows:
working. The campaigning group has set up a short Clare Watson, Northern Ireland Manager
100,000 Genomes Project online survey asking for carers’ experiences to help Epilepsy Action Northern Ireland
officially launched in Wales ensure all Wales’s local authorities are fulfilling their Add your voice for a better PO Box 2224, Belfast, BT1 9YU
legal obligations. patient experience
Tel: 07885 778585(please note 028 9063 4942 is
To take the survey, go to no longer in use)
The 100,000 Genomes Project was officially
www.surveymonkey.co.uk/r/StateofCaring2018 By completing a short survey you can help improve Email: cwatson@epilepsy.org.uk
launched in Wales in February. Welsh Health
healthcare services throughout Northern Ireland. Website: www.epilepsy.org.uk
Minister Vaughan Gething and Professor Julian
The 10,000 Voices initiative has been launched by
Sampson from Cardiff University introduced the
the Public Health Agency and Health and Social
UK-government-initiative at the Rare Disease Day
Care Trusts to introduce a more patient-focused
2018 reception at the Senedd in Cardiff. TSA
approach to services. It gives you an opportunity to
ambassador Marie James and her husband Perry To find the
share your experience of using the NHS in Northern
represented the TSA along with TSA Adviser Ellie
Ireland and highlight what is important to you. contact details of
Russell.
To find out more, go to www.10000voices.infoor
The Project sequences whole genomes from NHS your local TSA
call 028 950 89827
patients, focusing on rare diseases, some common Adviser, go to the
types of cancer and infectious diseases. Its aim is to
create a new genomic medicine service for the back page
NHS, transforming the way people are cared for.

To find out more, contact Rhys Vaughan on 02921 Free support services
847083or Gabriella Juma on 01291 841712, or
email 100k.genomeproject@wales.nhs.uk
The British Red Cross in
Raising awareness New Mobiloos
TSA Adviser Northern Ireland is offering Three new
for Wales Ellie free support services for Mobiloos
Russell has been talking to healthcare students people aged 18 and over. These include support at have been launched in Northern Ireland and the
Support clinics to raise awareness of TSC. She visited students home, community connecting and assisted Republic of Ireland. The specially designed
on health and social care courses at the discharge services, which are available in specific facilities for people with disabilities aim to help
University of South Wales and the Genetic areas. everyone enjoy outdoor events, knowing that
TSC clinics take place every month at the University
Counselling course at Cardiff University to tell
Hospital of Wales in Cardiff. To find out more, contact Independent Living accessible toilets are available.
them more about the rare disease and the work Service Manager Elizabeth Boyd on 028 90 735352
To find out more or discuss a referral, contact of the TSA. or 07710 711170, or email To find out more, go to www.mobiloo.org.uk
Ellie Russell or call 0300 030 1255. If you would like to book
If you’d like Ellie to come and talk to healthcare elizabethboyd@redcross.org.uk a Mobiloo for your event, email
professionals or students near you, get in touch. info@mobiloo.org.uk

28 Summer 2018 TSA SCAN 29