Page 25 - N&V Winter 2019

MASTERPLANS update

Thursday, 4th April, a group of patients involved with MASTERPLANS attended a Meeting at

The Studio, Birmingham, where several Researchers gave presentations on their work within
the project. The patients, including Elaine Holland and Yvonne Norton (LUPUS UK Trustees)
and Peter Norton (LUPUS UK Hon. Member), found the presentations most enlightening and
gained a good insight into the work taking place ‘behind the scenes’.

Thursday, 4th April, a group of patients had they not been present the previous day, Patients present at the Consortium Meeting
involved with MASTERPLANS attended a there was little of the content of these received certificates from Prof Bruce
Meeting at The Studio, Birmingham, where presentations that they would have acknowledging the time and work they
several Researchers gave presentations on understood - the differing levels of have invested in the MASTERPLANS project
their work within the project. The patients, knowledge between patients and the during the past year.
including Elaine Holland and Yvonne Norton MASTERPLANS medics really being Yvonne Norton
(LUPUS UK Trustees) and Peter Norton highlighted.
(LUPUS UK Hon. Member), found the During his closing Talk, Prof Ian Bruce
presentations most enlightening and gained
a good insight into the work taking place (MASTERPLANS lead) assured everyone that
the researchers are on course to present
‘behind the scenes’.
predictors of responses to Mycophenolate
The following day, Friday, 5th April, a Mofetil (MMF), Belimumab and
Consortium Meeting had been arranged Epratuzumab to the Medical Research
during which there were further presen- Council on the due date, 30th June 2019,
tations, some by the previous day’s and he is pleased with the progress of the
Speakers, and, supposedly, covering the project heading towards finalisation during
same work. The patients were agreed that, December 2019. Researchers Lay Review Day

Consortium Meeting PPI Group Lay Review Day

place to discuss interesting topics with other people affected by
lupus. In essence, Facebook has allowed LUPUS UK to get closer to
our members. We can now share information more easily and we
Our Facebook page currently has over 32,400 ‘likes’ can bring people together for support in new ways.
and growing every day. If you’d like to get involved with LUPUS UK on Facebook,
then please go to:
Facebook continues to be a fantastic way to share updates about
LUPUS UK more regularly and with a wider audience. It has been www.facebook.com/luPusuK
very good for promoting events too. If anybody is holding an You can also
awareness or fundraising event that is open to the public, then we
can share the details with all of our followers. By doing this we
have already seen an increased interest in some events.
The Facebook page also acts as a forum and it can be a great @luPusuK
LUPUS UK is now on Instagram

we have joined the social media, picture-sharing site Instagram.
Our username is @lupus_uk please come and follow us and say hello.
We will be sharing facts about lupus, photos from events and fundraisers as well as having conversations
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about various aspects of living with lupus.
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luPus uK NEWS & VIEWS SUMMER 2019