Page 44 - N&V Winter 2019

South & East Scotland

I am busy writing this The next Perth meeting will take place on just amazing. Katy and Paul crossed the
after having had a Saturday 11th August from 10.30 am so finishing line in 4 hours 29 minutes.
rollercoaster of a few please come along if you can. For those of Lou Ella Cole from Stanley, Perth organised
months as my poor you not on Facebook and who would be the Perth Active Charity Races at the North
mother has been in interested to attend in the future, then Inch in Perth, with baking/sweets, tombola
and out of hospital on please contact Evander direct via email and a Lupus Information stand on 21st April
five occasions. she is palliative with her evander.lupusuk@gmail.com or his phone
IPF but now also has a severe heart number is 07818 189120 for more
condition in addition so as I am her carer, information.
I’m afraid I’ve had to push back on some Fife - The last Quarterly Coffee and Chat
of my lupus commitments due to in St Andrews was held in July 2017.
spending more time on the west coast of Several visitors to our WLD stand at the Vic
scotland.
were keen to attend if it was ideally held
Coffee and Chats in Kirkcaldy so please get in touch with me
Our Dundee first meeting of the New Year if you would be interested in organising
was held on Saturday 16th March 2019 at and hosting this meeting.
lupus Awareness month - October
2019 with 5k,10k or 15k runs. There were
Advance warning that I have dates booked medals and goodie bags for finishers and
for LAM Awareness stands in the main all entry money went to LUPUS UK. This
concourse of Ninewells Hospital in Dundee so raised approximately £755. She also
will be looking for local volunteers to help organised various fundraising raffles to help
man the stand on Tuesday 1st October and hit her Marathon pledge. Lou Ella then
Tuesday 15th October to run in line with SLE successfully completed the London Marathon
Clinics from 12.30-16.30 hours. I’ve asked in a time of 4 hours 20 minutes and raised
Sarah Heney to see if she can organise an over £1,300 excluding gift aid with
10am at the McManus Gallery Cafe. There awareness stand over in at least one of the additional offline funds nearly at £400.
were 11 of us who braved the snow/sleet Edinburgh Hospitals as we’ve not been Future planned Fundraiser events
to get together. The next meeting is on 14th visible there since October 2015.
September 2019. John Scott, partner of Amy Kearns from
Our local london marathon near Kirkcaldy ran the Edinburgh Half
edinburgh - Sarah Heney held her second runners Fundraising for luPus uK Marathon on Sunday 26th May. It was
afternoon meeting of the Edinburgh coffee Sarah Heney held an incredible Afternoon originally going to be Amy running but
and chat at a new venue called The Place, Tea at her home on 7th April to help raise thanks to lupus she wasn't able to train for
on York Place, Edinburgh on Saturday 23rd and boost funds several months and then she found out she
March with nine people attending. for her was pregnant with their first child. They are
Please contact Sarah Heney, the meeting stepdaughter hoping to raise £300 so if you would like
host on sheney26@gmail.com or 07717 Katy Wakefield to donate here are the Just giving page
205465 for details of the next meeting if and son in law details:-
you are not on Facebook. Paul Wakefield https://www.justgiving.com/fundraising/j
who ran the
east lothian - We are still seeking a new London Marathon ohnscottsmarathon
host for this area. If you are reading this on 28th April Another of our members, Elizabeth Fraser
and would be interested in hosting then 2019 for LUPUS from Cowdenbeath held a Craft sale in
please get in touch with me. UK. Katy is late May with her fellow local Kelty
Perth - As reported in the Spring edition, pictured with Loving Hands Craft Group members in the
Evander von Weygand successfully helper Paul Kelty Community Centre to fundraise for
relaunched the Perth Lupus Group meeting Johnson. Sarah LUPUS UK.
on Saturday 11th May 2019. This was held invited her many friends and family who In other news, I have also been busy
at 10.30am in the Perth Concert Hall, kindly raised the grand total of £740. supporting the new replacement CTD Nurse,
Cakes and baking, raffles, charity car
washing and a passionate speech from Pamela Paton in her role at Aberdeen
Sarah boosted the funds. Royal Infirmary, NHS Grampian who works
Tuesdays and Wednesdays.
Sarah and her husband Stewart were then
down at the I have also been further assisting Dr Mohini
LUPUS UK Gray, Rheumatology Consultant at Western
Cheering Point General Hospital, Edinburgh by providing
on the her with feedback on her latest project
Marathon day. which is developing a user- friendly
Over £4,500 website for patients. When a drug change
has been happens, it is usual for Consultants to give
Glasshouse Café and some of our regular raised the patient a helpful drug leaflet but as
members who usually attend the Dundee 268C excluding Gift more people tend to look to the internet
group came as they live closer to Perth. Aid which is for information, she hopes this will be an
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luPus uK NEWS & VIEWS SUMMER 2019