Page 45 - N&V Winter 2019

additional information source. She is She fought a brave but tough battle with and a very fitting send off on World Lupus
preparing videos on the various her incurable cancer, just diagnosed last Day at the Golden Loch Fishery near
medications prescribed to treat SLE and summer, on top of her lupus. She was a Auchtermuchty.
wanted my feedback on her initial lovely lady, a good friend to me and a The South and East Scotland Lupus Group
Hydroxychloroquine video. keen LUPUS UK supporter as a long-
standing member of our group who will be send best wishes to all members and friends
And finally, it is with great sadness that on sadly missed by all who knew her. I was of LUPUS UK for a lovely and healthy
1st April 2019, one of our members, Pixie invited to attend her private memorial summer.
Coll, from Auchtermuchty passed away. service on 10th May which was a privilege Elaine Stewart

West Midlands

world lupus Day was future. Volunteers to set up Coffee & Chat Due to injury, two members of WMLG
given an extra push in in other areas of WMLG will be very Golden Bond Team had to drop out of
the west midlands with welcome. Virgin Money London Marathon 2019
posters being Re-locating the monthly Lupus Drop-In to after the closing date for registration had
displayed throughout intu Merry Hill Shopping Centre, Brierley passed so it was not possible to enter
the area in hospitals, medical centres, Hill, has, so far, not brought the surge of replacement Runners. However, the places
churches, libraries etc. rashmika and attendees that had been hoped for, will be carried over to next year when
Kettan Daji set up a display of lupus however, the regular members enjoy the WMLG will have places for 12 Runners in
literature in the entrance to sainsbury’s sessions and, when a Speaker is booked, VMLM 2020. All ten 2019 Team members
marshall lake store, shirley, solihull, there are usually more people present. completed the Race on Sunday, 28th April,
and spent the day speaking to people in times ranging from 03:17:57 to
about lupus, they also had £30 dropped The Lupus Specialist Nurse at University 06:29:54 - a fantastic result. Sponsorship
into their collecting box. Jenny mynett Hospital, Coventry (part-funded by LUPUS money is still coming in. If you, or someone
set up a display and hosted her annual UK), Kirstie James, has decided to leave you know, is interested in taking part in
wlD Coffee morning during the lupus the post after just ten months. We are, the 2020 VMLM on behalf of
Clinic at City Hospital, birmingham, obviously, disappointed by this news and WMLG/LUPUS UK please make contact
which raised a lovely £131. very much hope that it won’t be too long with Yvonne Norton.
Following the support of Sainsbury’s staff, before the hospital has another Lupus The website:
Rashmika and Kettan have established a Nurse to assist with the care and www.westmidlandslupus.co.uk and
monthly Coffee & Chat in the store café. treatment of people with lupus in Facebook: West Midlands Lupus Group
Beginning at 7.00 pm as the café is Coventry. are regularly updated with news and
closing, the whole area can be used, if Although there have not been many fund information of events and actions taking
necessary, without any disturbance from raising events over the past few months, place within the large area covered by
customers. The hot water urn is also those that have taken place have been WMLG. We do not have a forum on fb,
available so own drinks can be made. So, very worthwhile. Iris Downey and her referring to Health Unlocked.
if you are in the Birmingham area (or family have continued their Table Top
elsewhere) the first Tuesday of the month Sales, adding a further £600 to WMLG 2019 is racing by and the calendar is
at 7.00 pm Sainsbury’s Marshall Lake bank account. Julie and Jessica Evans telling us it is already Summer, a timely
store is the place to be. organised a Craft Fair at Holmer Parish reminder that the use of a higher SPF
Sunblock may be necessary.
Jackie Evans organised a lunch-time get- Church which raised £406. Following this
together in the restaurant at Wyevale success, Julie and Jessica plan to have The West Midlands Lupus Group sends
Garden Centre, Hereford, when she was another Craft Fair later in the year. best wishes to everyone for a happy and
joined by Carrye and Richard (previous Memorium donations have also been healthy time whilst taking care in the sun.
Chair of Devon & Cornwall Group, now received and, as ever, we are grateful to Yvonne Norton
living in Hereford). Disappointingly, no the Families who kindly make donations in
other members attended. If others make memory of loved ones when they are
contact, Jackie may try again in the near going through such sad times.

Rashmika and Kettan Daji at Sainsbury’s Birmingham Coffee & Chat Jenny Mynett and colleague WLD Coffee
Marshall Lake Store WLD information table 268C Morning

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luPus uK NEWS & VIEWS SUMMER 2019