Page 50 - N&V Winter 2019

For Your Disabled living Foundation Helpline NHs 111
Call 24 hours 111 (replacing NHs Direct in england)
Tel: 0300 999 0004
The free one-stop number is for patients with urgent,
Providing the best possible choice for people who
Information use equipment and adaptations to live a more but not life-threatening symptoms.
www.nhs.uk/111
independent life.
www.dlf.org.uk Parliamentary and Health service Ombudsman
Helpful Organisations Disability rights uK Tel: 0345 015 4033
Free service open to everyone. Set up to investigate
National organisation of and for disabled people. complaints that individuals have been treated unfairly
APs support uK Campaigning for equal rights for the disabled. or have received poor service from government
Tel: 0300 323 9943 Producing a range of publications on disability. departments and other public organisations and the
The Orchard, White Hart Lane, Basingstoke, NHS in England.
Hampshire RG21 4AF www.disabilityrightsuk.org www.ombudsman.org.uk
The national charity, APS Support UK, aims to achieve equality and Human rights Commission Patient uK
earlier diagnosis and offer support to anyone affected Tel: 0808 8000082 Internet site providing health information to patients
by antiphospholipid syndrome (APS) through and health proffessionals.
awareness, education and research. Information and Advice www.patient.info
www.aps-support.org.uk www.equalityhumanrights.com PmrGCA uK (Polymyalgia rheumatica
benefits Calculators Fibromyalgia Action uK & Giant Cell Arteritis uK)
Independent benefits calculators-Find out what Tel: 0300 999 3333 Tel: 0300 111 5090
benefits you can get and how to claim Everything you need to know about Fibromyalgia, Offers support, raises awareness, and encourages
www.gov.uk/benefits-calculators including UK Support groups, pain management, research into the two illnesses.
www.pmrgcauk.com
benefits & work Publishing ltd exercise, legal information, research etc samaritans
Get the benefits you’re entitled to. Plenty of free www.fmauk.org Helpline: 116 123
downloads or subscribe for full use of website. Samaritans is available to anyone who is in any
www.benefitsandwork.co.uk Healthwatch england kind of distress. People of all backgrounds and
Tel: 03000 683 000
british Association of skin Camouflage Healthwatch England is the independent consumer ages can contact them for emotional support.
Tel: 01254 703107 www.samaritans.org
PO Box 3671, Chester CH1 9QH champion for health and social care in England. scleroderma & raynauds uK
Specialist authority on para-medical skin camouflage www.healthwatch.co.uk Tel: 020 3893 5998 Helpline 0800 311 2756
www.skin-camouflage.net 18-20 Bride Lane, London EC4Y 8EE
london lupus Centre
british Heart Foundation Supporting patients and their families, offering
Helpline: 0300 3303311 Tel: 0207 234 2155 support advice and information. Putting patients
Greater London House, 180 Hampstead Road London Bridge Hospital, in touch with each other.
London NW1 7AW 27-29 Tooley Street, London SE1 2PR www.sruk.co.uk
Leading UK charity fighting heart and circulatory One of the largest private hospitals in the UK scotland - NHs 24
disease, providing support and information for specialising in lupus treatment Call 111 (24 hours)
patients and their families www.londonlupuscentre.co.uk
www.bhf.org.uk NHS 24 is a 24 hour telephone health advice and
information service for people in Scotland
british lung Foundation lupus Canada www.nhs24.scot
Tel: 03000 030555 www.lupuscanada.org sCOPe
Funds research and offers information and support Helpline: 0808 800 3333 (9am-5pm weekdays)
to lung condition sufferers, their families and friends, lupus europe Providing free, independent and impartial information
with more than 120 groups. www.lupus-europe.org and support on the issues that matter to disabled
www.blf.org.uk people and their families.
lupus Foundation of America
british red Cross uK Office www.lupus.org www.scope.org.uk
Tel: 0344 8711111 stroke Association
Community Services Unit, lupus Trust Helpline: 0303 3033100
44 Moorfields, London EC2Y 9AL Tel: 020 7188 7306 Provides support for people who have had strokes,
Offering valuable short-term support to vulnerable c/o Louise Coote Lupus Unit, 1st Floor Counting their families and carers. Campaigning to educate
people in the UK, whether they're recovering from an House, Guy's Hospital, London SE1 9RT and inform at to all levels of society.
operation, need a wheelchair or just need help coping Registered charity supporting lupus research at www.stroke.org.uk
around the house. St. Thomas’ Hospital and raising awareness of lupus. Turn2us
www.redcross.org.uk www.lupus.org.uk Charity helping people in financial need access welfare
benefits, charitable grants and other financial help.
british sjögrens syndrome Association (bssA) medic Alert www.turn2us.org.uk
Helpline Tel: 0121 478 1133 Tel: 01908 951045
Office Tel: 0121 478 0222 The registered charity that provides an emergency vasculitis uK
Self-help organisation for people with SS. identification system to protect and save lives. Helpline: 0300 365 0075
Whether a patient, carer or medical professional you
A forum to exchange views on how best to cope www.medicalert.org.uk will find a wealth of accurate and up to date
with living with Sjogren’s syndrome. information.
www.bssa.uk.net miscarriage Association www.vasculitis.org.uk
Helpline: 01924 200799
Carers uK Helpline offering information and support following versus Arthritis
Tel: 0808 808 7777 Tel: 0800 5200 520
Provides information and advice on all aspects of pregnancy loss.. Copeman House, St Mary's Court, St Mary's Gate,
caring for both carers and professionals. www.miscarriageassociation.org.uk Chesterfield S41 7TD
www.carersuk.org Kidney research uK Merger of Arthritis Research UK and Arthritis Care
Changing Faces Tel: 0300 303 1100 created to support people living with arthritis and
Tel: 0300 012 0275 Support through life’s ups and downs for kidney related conditions in the UK, while continuing to
The Squire Centre, 33-37 University Street, patients, their families and carers deliver ground-breaking research.
London WC1E 6JN www.kidneyresearchuk.org www.versusarthritis.org
UK charity that supports and represents people wales - NHs Direct wales
who have disfigurements of the face or body from National Osteoporosis society Tel: 0845 4647 or 111
any cause. Helpline: 0808 800 0035 NHS Direct Wales (Galw Iechyd Cymru) is the NHS
www.changingfaces.org.uk National charity dedicated to improving diagnosis, Direct service for people in Wales. It provides
Citizens Advice bureau prevention and treatment of this disease. information in English and Welsh
268C
Contact your local branch for help and advice www.nos.org.uk www.nhsdirect.wales.nhs.uk
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luPus uK NEWS & VIEWS SUMMER 2019