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128     PART 1: An Overview of the Approach to and Organization of Critical Care


                 victim who was kept alive in a permanent vegetative state within a   nonbeneficial. 31-33  On the very rare occasions that courts have been
                 government (Missouri) long-term care facility, through the use of feed-  involved prospectively with the futility issue, their holdings have been
                 ing and hydration tubes. Her parents asked that this intervention be   confusing, inconsistent, and poorly reasoned. However, no court has
                 discontinued, a request they claimed was consistent with the patient’s   ever imposed liability for failure to begin or perpetuate futile interven-
                 previously expressed (although not documented) wishes. The attend-  tions for a critically ill patient, even in the face of family insistence on
                 ing physicians refused to honor this request, and the Missouri Supreme   doing everything technologically possible. In practice, clinicians usu-
                 Court upheld the trial court decision and denied the parents’ request to   ally seem to take the path of least resistance in such circumstances and
                 discontinue treatment.                                “treat the family,” often out of misapprehension about potential liability
                   On appeal, the US Supreme Court held that a mentally capable adult   exposure. In the vast majority of cases, better physician-family com-
                 has a fundamental constitutional right, under the liberty provision of the   munication, in which the realistic implications of “doing everything
                 Fourteenth Amendment’s due process clause, to make personal medical   possible” are spelled out clearly, can obviate serious disagreement over
                 decisions, even regarding life-prolonging treatments including artificial   how to proceed. 34
                 feeding and hydration. For decisionally incapacitated patients, though,
                 the court ruled that the public interest in preserving life is strong enough   INSTITUTIONAL PROTOCOLS AND SUPPORTS
                 to permit a state, if the  state so chooses, to require—before the state
                 must comply with a surrogate’s instructions to withdraw life-prolonging   A broad panoply of tools for guiding life-support decisions in critical
                 medical treatment—“clear and convincing” evidence that the patient   care situations have been published. These tools vary widely in their
                 would  want  that  treatment  withdrawn  if  the  patient  were  currently   genesis, authorship, format, focus, and practicality. 35
                 able to make and express an autonomous choice. Presumably, a writ-  Hospitals have adopted written policies and procedures concerning
                 ten declaration made by the patient while the patient was decisionally   patient admission to, retention in, and discharge from ICUs. The ability
                 capable would suffice as evidence of treatment preference in the event   of physicians to consult institutional guidelines generally leads to better,
                 of subsequent incapacity. Under the Cruzan decision, states are also free   more consistent decisions that are easier to defend against later claims of
                 to set lower standards of proof than “clear and convincing” evidence for   impropriety.  Clear protocols facilitate communication and cooperation
                                                                                36
                 incapacitated patients, namely proof by a preponderance of the evidence   among members of the health care team, decreasing both inadvertent
                 (in other words, greater than a 51% likelihood).      mistakes and interpersonal tension. Institutional protocols are also
                   One form of treatment limitation around which there is a high degree   essential as inevitable public and private discussions regarding health
                 of  current consensus is  the  Do-Not-Resuscitate (DNR)  or  No Code   care rationing take on increasing urgency. 37
                 order, which instructs caregivers to refrain from initiating cardiopul-  The development and dissemination of institutional protocols regard-
                 monary resuscitation (CPR) for a patient who suffers an anticipated   ing critical care are required by the federal Patient Self-Determination
                 cardiac arrest. There have been very few legal cases in this arena, but the   Act (PSDA)  and some state statutes. Such protocols are also required
                                                                                38
                 well-accepted rule is that a decisionally capable patient has the right to   for hospital accreditation by the Joint Commission. 39
                 refuse CPR, and that surrogates may elect to forego CPR for a patient   Critical care physicians must be very familiar with their own institu-
                 if the likely burdens of this intervention to the patient would be dispro-  tions’ formal policies and procedures, and must ensure familiarity with
                 portionate to any benefits (eg, mere continued existence until the next   them on the part of nurses and other team members. Ideally, members of
                 arrest) that might be derived. As is true for all medical decisions, a DNR   the medical staff should contribute to the drafting, continuing reevalu-
                 order should be created only after a thorough consultation with the   ation, and revision of institutional protocols. Questions regarding the
                 patient or surrogate and should be clearly documented in the medical   meaning or implementation of these protocols should be addressed in
                 record.  A DNR order may be included as part of a more comprehensive   a timely fashion (before a crisis erupts) to the hospital’s legal counsel
                      23
                 POLST (discussed earlier).                            and/or clinical ethics consultant. 40
                   When the  patient or  surrogate declines aggressive, technologically   Similarly, the physician must be knowledgeable about the operation
                 oriented interventions, the physician still has the legal obligation to   of the hospital’s institutional ethics committee (IEC). The past several
                 provide basic palliative (comfort, pain control, and emotional support)   decades have seen a proliferation within health care institutions of enti-
                 and hygiene measures.  Failure to do so could constitute negligence or   ties designed to provide education, formulate policies and procedures,
                                  24
                 form the basis for professional disciplinary action. Good palliative care   and offer advice regarding particular cases and issues with serious
                 may sometimes include the practice of palliative sedation (also called   bioethical implications. Joint Commission standards require that hos-
                 total, terminal, or controlled sedation) for intractable distress or suffer-  pitals have in place a mechanism for carrying out these functions, and
                 ing during the dying process. 25                      a few states specifically require the existence of an IEC in each licensed
                   In every American jurisdiction, it is a criminal offense (as a form of   health  care  facility.  Although  the  emphasis  of  IECs  is,  and  ought  to
                 homicide) for a physician to engage in positive or affirmative actions   be, on better ethical decision making, salutary legal benefits may also
                 that are intended to hasten a patient’s death (such as administering a   result from their activities. Effective use of an IEC may help keep out
                 lethal injection), even if the patient requested such action.  Similarly,   of the judicial system claims that otherwise might have been initiated
                                                            26
                 in every state except Oregon, Washington, and Montana,  it is illegal   by relatives or health care team members who feel that their opinions
                                                            27
                 for a physician to comply with a patient’s request that the physician   have not been adequately taken into account. Moreover, in the relatively
                 supply the patient with the means to hasten his or her own death (such   unlikely event of the informal decision-making process breaking down
                 as writing a prescription for a lethal dose of a medication, knowing   and court involvement being invoked, using an IEC may act as powerful
                 that the patient intends to commit suicide by ingesting that lethal   evidence of the provider’s good faith and appropriate concern for patient
                 dose).  The US Supreme Court has soundly rejected the argument   autonomy and welfare.
                      28
                 that individuals have any constitutional right to physician-assisted
                 death (PAD). 29,30                                    DETERMINATIONS OF DEATH
                   The other side of the coin on treatment decision making is presented
                 when the patient, or more usually the family, insists on initiation or   One inescapable aspect of critical care medicine with important legal
                 continuation of medical treatment (“doing everything possible”) that   implications is the determination and declaration of when a patient
                 the clinician concludes is futile in terms of benefit to the patient.   has died. Traditional definitions of death based on cessation of car-
                 Neither a patient nor the family has a legal right to, nor does a physi-  diorespiratory functioning are no longer sufficient by themselves in
                 cian  owe  an  obligation  to  provide,  medical  treatment  that  would be   light of modern medical technology that frequently can maintain the










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