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Ethical Issues in Critical Care 99



               Learning activities, Continued
               7.  The  Nursing  Council  of  New  Zealand  Code  of  Conduct  for   8.  Aveyard suggested that the concept of informed consent prior
                  Nurses contains four principles (see Box 5.2). Principle 2 specifi-  to nursing care procedures is undeveloped, and that this may
                  cally contains criteria that relate to acting ethically and main-  lead to unwanted and inappropriate delivery of care.  Reflect
                                                                                                          17
                  taining standards of practice. Reflect on the degree to which   on your practice in the critical care setting in relation to how
                  your practice demonstrates these values. Consider how these   you obtain informed consent for nursing activities.
                  values relate to critical care practice. Discuss the values with
                  your critical care colleagues.


             RELEVANT LEGISLATION                                 National  Health  and  Medical  Research  Council  (NHMRC),  Values  and
                                                                    Ethics:  Guidelines  for  Ethical  Conduct  in  Aboriginal  and  Torres  Strait  Islander
             New Zealand Acts                                       Health   Research,  http://www.health.gov.au/nhmrc/publications/synopses/
                                                                    e52syn.htm
             ●  Privacy Act 1993                                  National  Health  and  Medical  Research  Council  (NHMRC)  &  Australian
             ●  Public Health and Disability Act 2000               Vice-Chancellor’s  Committee  (AVCC),  Joint  NHMRC/AVCC  Statement  and
                                                                    Guidelines  on  Research  Practice,  1997,  http://www.nhmrc.gov.au/funding/
             Australian Acts                                        policy/researchprac.htm
                                                                  New Zealand Privacy Commissioner website,www.privacy.org.nz
             ●  Health Records (Privacy and Access) Act 1997 (ACT)  New  Zealand  multi-region  ethics  committees,  http://www.newhealth.govt.nz/
             ●  Information Act 2002 (NT)                           ethicscommittees/committees/multi-region.htm
             ●  Health Records and Information Privacy Act 2002 (NSW)  NHS Organ Donation Register Wall of Life, www.walloflife.org.uk
             ●  Health Records Act 2001 (Vic.)                    Standards Australia Personal Privacy Protection in Health Care Information Systems
                                                                    (AS4400-1995),http://www.standards.com.au
             ●  Privacy Act 1988, s. 6 (Cwlth)                    Therapeutic Goods Administration, Human Research Ethics Committees and the
             ●  Health  Records  and  Information  Privacy  Act  2002,  s.   Therapeutic  Goods  Legislation,  Department  of  Health  &  Aged  Care,  Can-
                4(NSW)                                              berra,2001, http://www.tga.gov.au/pdf/docs/unapproved/hrec.pdf
             ●  Information Act 2002, s. 5(NT)                    US  Department  of  Health  and  Human  Services  and  Other  Federal  Agencies
                                                                    Common Rule. 45 Code of Federal Regulations 46, (1991), http://ohsr.od.nih.gov/
             ●  Health Records Act 2001, s. 3(Vic.)                 guidelines/45cfr46.html
             ●  Information Privacy Act 2000 (Vic.)               World  Health  Organization,  Operational  Gudelines  for  Ethics  Committees  that
             ●  Health Services Act 1991 (Qld)                      Review  Biomedical  Research  (2000),  http://apps.who.int/tdr/svc/publications/
             ●  Privacy  and  Personal  Information  Protection  Act  1998   training-guideline-publications/operational-guidelines-ethics-biomedical-
                                                                    research
                (NSW)                                             World Medical Association, Declaration of Helsinki updated 2008, http://www.
                                                                    hrc.govt.nz/assets/pdfs/publications/17c.pdf
             ONLINE RESOURCES
             The Australian Organ and Tissue Authority (AOTA), http://www.donatelife.gov.au  FURTHER READING
             Council  for  International  Organisations  of  Medical  Sciences  (CIOMS),  Interna-
               tional Guidelines for Biomedical Research Involving Human Subjects. (1993, revised   Benatar  S.  Reflections  and  recommendations  on  research  ethics  in  developing
               in  August  2002);  International  Guidelines  for  Epidemiological  Research  (1991),   countries. Soc Sci Med 2002; 54(7): 1131–41.
               http://www.cioms.ch/                               Bhutta ZA. Ethics in international health research: a perspective from the develop-
             Health  Research  Council  of  New  Zealand  (HRCNZ),  Guidelines  for  Researchers   ing world. Bull World Health Organ 2002; 80(2): 114–20.
               on  Health  Research  Involving  Maori,  http://www.hrc.govt.nz/root/Ethics/  DeAngelis CD, Drazen J, Frizelle FA, Haug C, Hoey J et al. Clinical trial registra-
               Guidelines_and_Publications.html                     tion:  a  statement  from  the  International  Committee  of  Medical  Journal
             Health Research Council of New Zealand (HRCNZ), http://www.hrc.govt.nz/root/  Editors. JAMA 2004; 292: 1363–4.
               Ethics/Guidelines_and_Publications.html            Emmanuel  EJ,  Wendler  D,  Killen  J,  Grady  C.  What  makes  clinical  research  in
             Medical Research Council of Canada (MRC), National Science and Engineering   developing countries ethical? The benchmarks of ethical research. J Infect Dis
               Research Council of Canada (NSERC) & the Social Science and Humanities   2004; 189: 930–37.
               Research  Council  of  Canada  (SSHRC),  Tri-Council  Policy  Statement:  Ethical   Gillon, R. End-of-life decisions. J Med Ethics 1999; 25:435–6.
               Conduct for Research involving Humans, Ottawa, MRC, NSERC & SSHRC, 1998,   Lavery JV, Grady C, Wahl ER, Emanuel EJ. Ethical issues in international biomedical
               http://www.ncehr-cnerh.org/english/code _ 2          research: a casebook. Oxford: Oxford University Press; 2007.
             National Ethics Advisory Committee, http://www.newhealth.govt.nz/neac  Sonnenblick M. Advanced medical directives. Harefuah 2002; 141(2): 181–8.
             National  Health  and  Medical  Research  Council  (NHMRC),  Organs  Retained   Organ Donation Taskforce Implementation Programme; Working together to save
               at  Autopsy:  Ethical  and  Practical  Issues,  http://www.health.gov.au/nhmrc/  lives:  The  Organ  Donation  Taskforce  Implementation  Programme  Annual  Report
               publications/synopses/e41syn.htm                     2008/2009,  Department  of  Health,  London.  Available  from:  http://www.bts.
             National Health and Medical Research Council (NHMRC), National Statement on   org.uk/transplantation/organ-donation-taskforce/
               Ethical  Conduct  in  Human  Research  2007,  http://www.health.gov.au/nhmrc/
               publications/synopses/e35syn.htm
             National Health and Medical Research Council (NHMRC), The Human Research   REFERENCES
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