Page 124 - ACCCN's Critical Care Nursing

Ethical Issues in Critical Care 101

69. National Health and Medical Research Council. Organ and Tissue Donation 86. National Health and Medical Research Council (NHMRC). Challenging
after Death, for Transplantation – Guidelines for Ethical Practice for Health Profes- ethical issues in contemporary research on human beings. Canberra: NHMRC;
sionals. Canberra: NHMRC; 2007. 2006. http://www.nhmrc.gov.au/_files_nhmrc/file/publications/synopses/
70. Sundin-Huard D, Fahy K. The problems with the validity of the diagnosis of e73.pdf
brain death. Nurs Crit Care 2004; 9(2): 64–71. 87. Global internet liberty campaign privacy and human rights website: An
71. Person IY, Bazeley P, Spencer-Lane T et al. A survey of families of brain dead International Survey of Privacy Laws and Practice. Available from: http://
patients: their experiences, attitudes to organ donation and transplantation. gilc.org/privacy/survey/
Anaesth Intens Care 1995; 23: 88–95. 88. United Nations, Guidelines concerning computerised personal data files.
72. Pearson A, Robertson-Malt S, Walsh K, FitzGerald M. Intensive care nurses’ Adopted by the General Assembly on 14 December 1990; Organisation for
experiences of caring for brain dead organ donor patients. J Clin Nurs Economic Co-operation and Development, Guidelines on the Protection of
2001;10: 132–9. Privacy and Transborder Flows of Personal Data; European Union, Directive
73. Sadala M, Mendes H. Caring for organ donors: the intensive care unit nurses’ 95/46/EC of the European Parliament and of the Council of 24 October
view. Qual Health Res 2000; 10(6): 788–805. 1995. http://www.privacy.org.au/Resources/PLawsIntl.html
74. White G. Intensive care nurses’ perceptions of brain death. Aust Crit Care 89. Australian Government. The Privacy Act. In Act 119 of 1988; 1988.
2003; 16(1): 7–14. 90. National Health and Medical Research Council. (NHMRC) Guidelines under
75. Kirklin D. The altruistic act of asking. J Med Ethics 2003; 29(3): 193–6. Section 95 of the Privacy Act 1988. Canberra: NHMRC; 2001.
76. DeJong W, Franz H et al. Requesting organ donation: an interview study of 91. Thomson C. Protecting health information privacy in research: how much
donor and nondonor families. Am J Crit Care 1998; 7(1): 13. law do Australians need? Med J Aust 2005; 183(6): 315–17.
77. Smith J. Organ donation: what can we learn from North America? Nurs Crit 92. Council for International Organisations of Medical Sciences (CIOMS) in
Care 2003; 8(4): 172–8. collaboration with the World Health Organization (WHO). International
78. Cleiren MP, Van Zoelen J. Post-mortem organ donation and grief: a study of ethical guidelines for biomedical research involving human subjects. Geneva:
consent, refusal and well-being in bereavement. Death Stud 2002; 26: CIOMS; 1993.
837–49. 93 [http://www.nhmrc.gov.au/health_ethics/homer/index.htm#1, accessed Nov
79. Ingram JE, Buckner EB, Rayburn AB. Critical Care Nurses’ attitudes and knowl- 2010].
edge related to organ donation. Dimens Crit Care 2002; 21(6): 249–55. 94. South Australian Department of Health Code of Fair Information Practice,
80. Kent B, Owens RG. Conflicting attitudes to corneal and organ donation: a 2004. http://www.publications.health.sa.gov.au/ainfo/1/
study of nurses’ attitudes to organ donation. Int J Nurs Stud 1995; 32(5): 95. National Health and Medical Research Council. (NHMRC) Australian Code
484–92. for the Responsible Conduct of Research. Canberra: NHMRC; 2007.
81. Kerridge IH, Saul P, Lowe M, McPhee J, Williams D. Death, dying and dona- 96. World Health Organization. International Clinical Trials Registry Platform.
tion: organ transplantation and the diagnosis of death. J Med Ethics 2002; http://apps.who.int/trialsearch/ accessed February 2011.
28(2): 89–94. 97. Ferrand E, Lemaire B, Regnier K, Kuteifan M, Badet P et al. Discrepancies
82. Pollard BJ, Autonomy and paternalism in medicine. Med J Aust 1993; between perceptions by physicians and nursing staff of intensive care
159(11–12): 797–802. unit end-of-life decisions. Am J Respir Crit Care Med 2003; 167(10):
83. National Health and Medical Research Council (NHMRC). Human Research 1310–15.
Ethics Handbook. Canberra: NHMRC; 2001. 98. Azoulay E, Timsit JF, Sprung CL, Soares M, Rusinova K, Lafabrie A et al.
84. National Health and Medical Research Council (NHMRC). Values and Ethics: Prevalence and factors of Intensive Care Unit Conflicts: the Conflicus Study.
Guidelines for Ethical Conduct in Aboriginal and Torres Strait Islander Health Am J Resp & Crit Care Med 2009; 180(9): 853–60.
Research, Canberra, NHMRC. http://www.nhmrc.gov.au/publications/ 99. Puntillo K, Benner T, Drought B, Drew N, Stotts D et al. End-of-life issues
synopses/e52syn.htm in intensive care units: a national random survey of nurses’ knowledge and
85. The SAFE Study Investigators. A Comparison of Albumin and Saline for Fluid beliefs. Am J Crit Care 2001; 10(4): 216–29.
Resuscitation in the Intensive Care Unit. New Engl J Med 2004; 350: 100. Rubulotta F. EOL care is still a challenge for Italy. Minerva Anestesiologica
2247–56. 2010; 76(3): 203–8.