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Who could possibly forget the wonderful

events of 19 May 2018? No, we’re not talking
about the marriage of Meghan Markle and
Prince Harry (amazing though that was), but
the TSA’s Outlook Event in Manchester.

Forty adults with TSC met in Chancellors Hotel,
Fallowfields, and enjoyed a day-long programme which
Outlook report included sessions on using technology, a clinical update Lots of people

from Dr Chris Kingswood and a laughter yoga workshop.
Also Janet Bower, one of the first ever members of staff
Some people shared some interesting feedback and
at the TSA and long time supporter of Outlook, was with TSC enjoyed
presented with an award to recognise her hard work meeting each other
and commitment. comments on their lives and experiences of the day Outlook Event
at the TSA’s

“I thought the event was excellent. This year the events were a lot
more interactive and focused for people with TSC as adults
(Outlookers). The staff were very welcoming and clearly worked
very hard to make it a great day. Thank you.”

Clare
“This is my family” “I enjoyed meeting with friends I hadn’t
seen for many years, it was like we had
Clare Kassa, the TSA’s Head of Information “Getting a really good never been apart. I can be me when I’m at
and Support Services , who led this year’s Janet consultant and TS Events, where in the “real world” I have
event, said:
support through this to edit myself a lot.”
“The day was fantastic and the energy in the room group means you’re
was pretty inspiring. It was brilliant to see people You can meet
catching up with old friends, as well as new other people almost there” “Coming to the
people being warmly welcomed into the group. “Everolimus has
As someone new to the TSA, it was very powerful affected by TSC at “The range of changed my life – it Outlook group is the
for me to hear first-hand, people’s experiences and the TSA’s BIG DAY symptoms makes has really helped only place in the
witness the importance of peer to peer support. reduce my anxiety world where I am
The turnout was amazing, and our Chair, Martin event in November me feel like I’m able to ‘me’”
Short, says that he cannot remember so many playing TSC Bingo” too”
people at an Outlook event before. I think we all
agree that the most memorable session of the day “I have TS and I’d like to thank the TSA for doing the research
was the Laughter Workshop – such fun and
everyone entered into it wholeheartedly.” that helped me when I had my two children”

“I feel refreshed and re-energised and armed with new information
to take away and use.”

If you are an adult with TSC and looking for support, please call

0207 7922 7731 or email outlook@tuberous-sclerosis.org

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