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TSCommunity TSCommunity
TSCure
Keynote

For 2018, the keynote TS Alliance World
presentation will be on
BIG things Epilepsy, given by Conference –
Consultant Paediatric
Neurologist Dr Sam Amin, Funding UK
are coming! and experts from charity. Dr Sam Amin
Partners will run workshops on representation
sleep and challenging behaviours. The day will also
include the TSA AGM, an update on the TSA’s work from
our Chair and Chief Executive and a round up on the
research TSA is driving from TSA’s Head of Research Carole and Anne-Marie off to Dallas

Our annual BIG DAY event will be This year’s TSA Strategy Dr Chris Kingswood. The TSA is pleased to fund two members of the
Once again, you will have the opportunity to book one- community to attend the 2018 TS Alliance World
held on Saturday, 10 November at BIG DAY will have a to-one sessions with clinicians and researchers. Conference in Dallas Texas

Sheffield Hallam University. new format to during July.
make sure you get Carole Hagan is from
Lincolnshire and has an adult
the most out of daughter with TSC. Annemarie
Cotton is from Cheshire and
the event has a 14-year-old daughter Carole

with TSC.
Carole and Annemarie will be
attending presentations and
networking sessions
throughout the conference.
Do keep an eye on our website
and social media channels for
BigDay is always fun Annemarie interviews with Carole and
with lots to do and Annemarie ahead of their trip,
people to meet! updates during the conference and their blogs,
afterwards, detailing their experiences.
There will be a full day of presentations, workshops and opportunities to meet
with the TS community. And this time round, inspired by the TS Alliance’s world Carole stated: 'I am thrilled to be awarded a
conference, the event will be divided into two tracks – Children and young bursary to attend the TS Alliance conference! I
people, and Adults – to make it easier for you to navigate. will feedback on as many sessions as possible,
particularly around TSC and adults.'

Annemarie said: "I'm excited to be able to hear
the latest research news, make new connections
Siblings group and share my experiences.”

Also attending, from the TSA, will be Clare Kassa,
We will be running morning and Head of Support and Information Services. Dr
afternoon sessions for siblings of Chris Kingswood will also be there presenting.
children with TSC at this year’s BIG Crèche
DAY – these will give children a We would be really interested to hear about any
other members of the TSC Community who are
chance to meet others who have We will be providing our experienced, To find out more, to book and for going to the conference. It would be great to
a brother or sister with TSC, take qualified and fun-packed creche again assistance with booking, go to build awareness of the UK contingent, share
part in some sibling activities and this year. Children with TSC from 0-16 photographs and fly the flag for Team TSA!
have some fun together! Places will be supported by 1-1 support. Due www.tuberous-sclerosis.org
are limited, so booking is essential! to this we have to limit places to just 20. Or you can book direct at
Please book early to avoid Please let us know at
disappointment! Eventbrite: goo.gl/6mJDXV research@tuberous-sclerosis.org

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